May is ALS Awareness Month

From the International Alliance of ALS/MND Associations:

The impact on the community of ALS/MND is usually measured by the incidence and prevalence of the disease.  Incidence is the number of new cases added in a defined period, usually a year.  Prevalence is the number of cases existing at any point in time. The incidence of ALS/MND is 2 per 100,000 of total population, while prevalence is six per 100,000 of total population.

MDA presents Anyone’s Life Story

ALS Association

Learn more about me

It’s been a long road to get where I am today! Starting with my official clinical diagnosis of amyotrophic lateral sclerosis (ALS)April 29, 2010 to now at the ALS Clinic at the University of Rochester Medical Center.

In 2010, my colleagues and friends raised money for the ALS Association by walking in the annual Walk to Defeat ALS as the WXXI Walks for Joy team. We had shirts made & everything!

I made a special point to join the National Amyotrophic Lateral Sclerosis (ALS) Registry so we can find out more about all the people that have this illness and hopefully find a cause then a cure.

In March 2011, I made it to the MDA Muscle Walk in Rochester, NY where I got to meet some of the local staff of MDA Rochester.

In April 2011, I was the recipient of the Robert Ross Muscular Dystrophy Association’s Personal Achievement Award from the Muscular Dystrophy Association’s (MDA) Greater Rochester Finger Lakes Chapter (aka MDA Rochester). Read the press release

What I’ve been up to since then

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