For those of you that haven’t heard, I have been diagnosed with ALS (Lou Gehrig’s disease). The neurologists believe it is a slow progressing version, but incurable. I’m still able to walk, drive and go to work at this time. We don’t know how quickly it will progress.
Many people have asked what they can do for me. At the moment, I don’t really need much care. I will in the future.
If you are interested, there are 2 charities that you can donate to help:
Walk to Defeat ALS — WXXI Walks for Joy
Thank you for helping us reach our fund raising goal! WXXI Walks for Joy is a team of WXXI colleagues and friends who are pledging support to our friend Joy who was recently diagnosed with ALS. Together we can make a difference in the lives of those, like Joy, affected by Lou Gehrig’s Disease. Our team is committed to raising money to support people in our community with ALS and spread awareness of the urgency to find treatment and a cure. Please consider joining our team in the Walk to Defeat ALS or choose a team member from the list and donate to our cause.
Send Joy Parker and Her Family to Disney World Fund
My husband’s best friend Brian created this fund:
Joy was recently diagnosed with ALS. She and her family would like to go to Disney World this year, and I want to help them get there. So I’ve started a fund, with Joy and Mike, with a goal of $4,000. Please write a check for what you can, and make it out to “FBO Joy Parker” (FBO stands for “For the Benefit Of”). Send it to: Joy’s Disney Fund, C/O Brian Steblen, 2 Prospect Street, Fairport, NY 14450. They’d like to go in December, so get those pens out now!
Right now I’m trying to live to the best of my ability everyday. I’m hoping to make some trips and visit friends and family before I am unable to.
Thank you so much for being in my life.
You can keep up with me on here my blog: http://simplejoysonline.com